The Preemie Primer Book by Jennifer Gunter

Having a premature baby is a crash course in both medicine and health economics. Parents face complex information, a daunting environment, difficult decisions, and overwhelming grief and worry. As an OB/GYN I have delivered hundreds of premature babies, but I really understand the heartbreak and challenges of prematurity because I am also the mother of triplet boys born extremely prematurely. Sadly, one of my sons died and my surviving boys were hospitalized for months.

 

What do you do when you have four filing cabinets full of research on prematurity, notebooks full of observations and therapies, the keen eye of an experienced physician, the inside scoop on the health care system, the experience of a mother who has been there, and breathing space now that your premature children have not been admitted to the hospital for 18 months and counting? The decision was easy: to share my unique insight into prematurity and provide a complete and practical resource for parents - a step-by-step guide through the premature baby experience from pregnancy through kindergarten and beyond.

 

The birth of a premature baby is like being dropped in a foreign country without a guide, a map, or language skills. The Preemie Primer: A Complete Guide for Parents of Premature Babies is the guidebook every family with a premature baby should own. It is the book I wished I could have read when my boys were born.

May 22nd, 2010

What the Arizona immigration law means for preemies

Day 1 NICU

Day 1 NICU

My boys were born in Denver, and we were so lucky to have a host of amazing home services provides by an organization called Denver Options. Physical therapy, occupational therapy, speech therapy, and even massage therapy in our living room, so not only did my boys get needed care but I did not have to expose them to the germs hidden in medical offices just waiting for vulnerable airways.Without these services I have no doubt my boys would not be where they are today.

The sad thing was Denver Options didn’t have enough clients. I know what you are thinking. How can that be? Prematurity affects more than 12% of births! Dear God, they should have be swamped. We even went on TV to help raise awareness.

One of the main reasons people did not take the hand that was offered was fear. Many premature babies are born to immigrants, especially illegal immigrants, because the poor and uninsured are statistically more likely to have a premature baby. The services were available in Spanish, but language was not the barrier, it was fear of authorities and fear of deportation. What will another law, clearly designed to single out non-whites do? Create yet another barrier and more fear.

As an immigrant who paid a lot of money to go through the correct channels and enter this country legally, I have a complex view of immigration. For example, if there is amnesty, can I get a refund on all the money I paid to follow the law?

However, immigration battles should not extend into health care. A baby born in this country is an American and entitled to the same services as every other American, regardless of their skin color or where their parents were born. The Arizona law will only make immigrant parents, both those here legally and those who have chosen another route, less likely to sign up for available services, even though a social security number and proof of citizenship are not required.

I am heart broken thinking fewer premature babies will get the care they so desperately need. Immigration issues need to be solved, but this is not the answer. Every baby born in America deserves the same care, otherwise, we should retire the Statue of Liberty.

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