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17 alpha hydroxyprogesterone 17OP aluminum cerebral palsy congenital heart defect congenital heart disease disability eating disorder fine motor skill fine motor skills flu going home hands health insurance hypotonia influenza KV Pharmaceuticals losing a baby Makena March of Dimes medicaid NEC NICU omega-3 OT perseverance pertussis Play-Doh preeclampsia preemie progesterone RediWhip RSV running safety stress Synagis Tae Kwon Do tests Thanksgiving turkey vaccine vaccines whooping cough writing-
Recent Posts
- Preventing prematurity: the importance of getting screened for Chlamydia
- Ther-Rx skips ACOG: the people have spoken. But can we do more?
- What does replacing the word retarded with intellectual disability accomplish?
- Cigna’s automatic denials: asshattery in action
- ACOG’s double standard on Makena: denouncing Ther-Rx but taking advertising dollars
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Author Archives: Jennifer Gunter
Preventing prematurity: the importance of getting screened for Chlamydia
Chlamydia is a sexually transmitted disease that infects close to 3 million people in the United States each year. For women, chlamydia causes an inflammation of the cervix which often produces no symptoms. Unfortunately, the bacteria can make its way … Continue reading
Ther-Rx skips ACOG: the people have spoken. But can we do more?
I just returned from the annual conference of the American Congress of OB/GYN in Washington, DC. The first thing I did when I hit the exhibit hall was look for Ther-Rx and their display booth for Makena. I wanted to … Continue reading
What does replacing the word retarded with intellectual disability accomplish?
Another celebrity, this time Lady Gaga, is in trouble for using the word “retarded” out of context. Retarded is derived from the Latin, retardare and means a delay. This etymology helps to explain the appropriate medical use of the word: … Continue reading
Posted in Uncategorized
Tagged cerebral palsy, disability, I.Q., intellectual disability, manners
3 Comments
Cigna’s automatic denials: asshattery in action
I’m going to be blunt here. Cigna is on my shit list. Oliver needed hand occupational therapy. Unfortunately, it wasn’t covered by my primary insurance. Lucky for me, my work provides a secondary insurance that picks up some of the … Continue reading
Posted in Uncategorized
2 Comments
ACOG’s double standard on Makena: denouncing Ther-Rx but taking advertising dollars
The American Congress of OB/GYN (ACOG) initially supported Ther-Rx’s application to the FDA for Makena. When the astronomical price, a hike from $10 to $1500 a shot, was announced ACOG released this statement: ACOG is extremely concerned that women’s health … Continue reading
Learning tools for preemies: turning math into music
We have been working on money every night. I posted back in March about how this was posing a particular challenge for Oliver. Each night we spend 15 minutes (that seems like 15 hours) identifying and adding change change. We’re … Continue reading
Making sense of the mess over Makena. Who wins and who loses?
It started in February. KV Pharmaceuticals submitted an application to the FDA to make Makena (17 hydroxyprogesterone or 17OP) an orphan drug. The application was endorsed by the March of Dimes. The actual quote from the medical director of the … Continue reading
Posted in Uncategorized
Tagged 17 alpha hydroxyprogesterone, 17OP, Makena, March of Dimes
2 Comments
Magic helps a preemie blossom
Oliver struggles physically, and he knows it. We have discussions about how he is last in sports, even behind the smallest girls (sigh). I tell him about his heart and his lungs and his muscles, but what does that mean … Continue reading
Rep. Henry Waxman demands answers from Ther-Rx about Makena
Rep. Henry Waxman, Rep. Frank Pallone, Jr., and Rep. Diana DeGette sent a letter on March 24th to Gregory Divis, the CEO of Ther-Rx, regarding the pricing of Makena (see below). Of note, the honorable Mr. Waxman, Mr. Pallone, Jr, and Ms. … Continue reading
The March of Dimes really responds to Ther-Rx and price of Makena, well, sort of…
Today (March 23rd) Dr. Jennifer Howse of the March of Dimes (MOD) finally responded to the egregious price gouging/extortion that is Makena (17 Alpha-hydroxyprogesterone caproate, or 17OP, newly packaged as an orphan drug). As we all know, this travesty was … Continue reading
Posted in Uncategorized
Tagged 17 alpha hydroxyprogesterone, 17OP, KV Pharmaceuticals, Makena, March of Dimes
9 Comments