Monthly Archives: December 2009

Christmas Morning

It is  5 am and I am sure the boys will be up in a hour, so I am enjoying the quiet inside and the darkness outside. Yesterday we were talking about our first Christmas with the boys.  I couldn’t … Continue reading

Posted in Uncategorized | 1 Comment

My hands don’t do what I want them to…

It had been a tough night. If you have a preemie, you know. It started simply enough – a card received in the mail from a classmate, written in the large and apprehensive style of a kindergartner. My boys wanted to write … Continue reading

Posted in Uncategorized | Tagged , , | 2 Comments

Why isn’t congenital heart disease as important as neural tube defects and hypothyroidism?

Having a baby with a health problem is hard. Knowing what you are facing a head of time (or at least very soon after delivery) is helpful emotionally and, for some babies, it can be lifesaving. For example, every pregnancy in North America … Continue reading

Posted in Uncategorized | 9 Comments

If I could be there I would

Somewhere in another state a new mother brought her precious daughter home only to have her die 5 days later. She tweeted that they will wear pink at her funeral. Her pain was raw even through the filter of cyberspace. … Continue reading

Posted in Uncategorized | Tagged | 4 Comments

Sorry boys, but you HAVE to learn to swim

Swimming has been a challenge for my boys. Never mind the coordination issues and the sensory issues around actually having to put your face in the water, but they also appear to have inherited my husband’s lead-like buoyancy. We tried … Continue reading

Posted in Uncategorized | 1 Comment

Do everything right and still go to collections

Eighty percent of medical bills in America contain errors. If some version of this story has not yet happened to you, keep an eye out because it probably will. In October 2005 I took Oliver to the urgent care clinic … Continue reading

Posted in Uncategorized | 3 Comments